Sepsis Diagnostics: Understanding Clinical Utility Through the Patient Perspective
Description:
This session was part of Sepsis Alliance Summit 2026
Sepsis diagnostic tools are often evaluated according to clinical performance, speed, and mortality outcomes. Yet, these measures may not capture the full impact of delayed, missed, or uncertain diagnoses on patients and families. This session brings the patient perspective into conversations about diagnostic value, examining how real-world experiences can reveal overlooked consequences and priorities across the care journey. Attendees will consider how partnering with patients and caregivers can produce more relevant evidence and support diagnostic innovations that improve care in ways that are meaningful to those directly affected by sepsis.
Session Objectives:
At the end of this session, the learner should be able to:
- Describe how patient and caregiver experience data can identify gaps in the sepsis diagnostic journey and inform more patient-centered approaches to evaluating the clinical utility of sepsis diagnostic tools.
- Explain why outcomes that matter to sepsis survivors and caregivers extend beyond mortality, and how incorporating these patient-centered outcomes can strengthen assessment of diagnostic protocols.
- Restate strategies for meaningfully engaging patients and caregivers as research partners to generate evidence that improves the earlier use of and evaluation of sepsis diagnostics.
Target Audience:
Nurses, advanced practice providers, physicians, emergency responders, pharmacists, medical technologists, respiratory therapists, physical/occupational therapists, infection prevention specialists, data/quality specialists, and more.
Suz Schrandt, JD
Founder and CEO
ExPPect
Suz Schrandt, JD is a patient and patient engagement activist with a health and disability law and policy background. She is Founder and CEO of ExPPect, a patient engagement “do-tank”, and previously served in engagement leadership roles at the Patient-Centered Outcomes Research Institute (PCORI), the Arthritis Foundation, and the Society to Improve Diagnosis in Medicine. Her career spans work in health reform, bioethics, disability rights, and ongoing efforts in patient-led health professions education. Schrandt has served on the FDA’s Patient Engagement Advisory Committee, the Geneva Foundation for Military Research’s Scientific Advisory Board, the Innovation and Value Initiative’s Board of Directors, the National Institutes of Arthritis and Musculoskeletal and Skin Diseases Advisory Committee, and as chair for the International Society of Pharmacoeconomics and Outcomes Research (ISPOR) Global Patient Council. Schrandt received her law degree from the University of Kansas and has co-authored multiple peer-reviewed articles on health policy and the value of patient engagement.